I was home, last August,
when I received a phone call from my friend, Tashi Namgay. He had a good news,
“Hello Riku, oye, Bhutan Kidney Foundation is certified today as public-benefit
organization with the CSO Authority.” Yes, I could feel his heart exalting, reveling
in his coveted achievement, his dream come true. You don’t know how much it
meant to him and of course to me. By the way, it took him almost seven years to
get his Foundation registered as CSO.
I congratulated him.
The Bhutan Kidney
Foundation (BKF) provides a new hope for all those poor kidney failure patients
who are at the jaws of death by providing quality health services and financial
supports. And through its comprehensive and preventive measures, BKF works
towards reducing the incidences of renal and other lifestyle diseases in
Bhutan. Today, there are over 120 kidney failure patients in Bhutan and its
number is alarmingly increasing.
Pic: With the Education Secretary, Principal of ELC, and Lhamo Drukpa
I’m very proud to have become
associated as a friend with 27-year old Tashi Namgay, the Founder/Executive
Director of BKF. This Foundation has been born out of his vision, relentless effort
and sacrifice.
A Class X graduate of Jakar
HSS and former civil servant, Tashi is a kidney transplant recipient since
2006. He was only 18, in 2004, when he was diagnosed both of his kidney organs
failed. However, fortunately, with the help of a kind donor, and the RGoB that
financed his travel, surgical and medical expenses, his renal transplant was
success in April, 2006 at Christian Medical College, Vellore, India.
Through his own experience,
Tashi discovered that there were many inherent problems and shortages associated
with renal diseases and health services in Bhutan. This, according to him, led kidney
failure patients and their family members and relatives suffering hopelessly. There
was lack of counseling and moral support service for kidney failure patients,
and shortage of dialysis machines and trained health staff to operate the
machines in Bhutan. Also, there were lots of hidden expenses incurred (which
were not covered by RGoB) while patients were sent away for renal transplant in
India. Sometimes, patients had to extend their stay in India due to medical
complications.
Pic: With the patients at JDWNRH
Moreover, without Act of
Law for Organ Donation and Transplant in Bhutan, many people were
misappropriating money collected through fundraising activities, and the illegal
commercialization of organs was growing rampant. Most shockingly, there was no
proper advocacy programmes on diets and lifestyle diseases (diabetes,
hypertension, obesity) which are the leading causes to kidney failure
incidences. The RGoB has been spending millions of ngultrums for renal medical
treatments and travels which otherwise can be prevented.
Soon after his renal
transplant in 2006, Tashi Namgay started googling for kidney organizations of
other countries. He was quite inspired by the way they were contributing to wellbeing
of kidney failure patients and prevention of renal diseases. It was at that moment
when he thought of establishing one such organization in Bhutan.
However, only after a
handful of months later, this young man learned that what he was trying to do
was not easy at all. This project, in fact, would cost him millions of ngultrum
that he didn’t have. It, too, would require him better qualification, skills
and experience. He was only 20, then, had qualification of Class X and very
fresh in job. So, Tashi Namgay started looking for other kidney transplant
recipients in Bhutan who had good qualification, expertise and experience to
form an NGO for kidney patients.
Pic: With Amrith Bdr. Subba
Tashi phoned each of them,
met them, and discussed establishing this aspiring project. In 2008, they held their
first meeting where 21 interested members (all kidney transplant recipients) attended.
The participating members showed great interest about establishing the
Foundation. As desired, the meeting formed a Core Working Group consisting of
five members to draft legal documents of the Foundation.
But sadly, the consecutive
meetings miserably failed. Most members of the Core Working Group didn’t turn
up for the meetings. Mail sent, but no reply. Phone calls not responded. And his
requests fell on deaf ears. Just like that, a solid year gone.
In the mid of 2009, Tashi
conducted a mass meeting where, again, he called all kidney transplant
recipients who had attended the last meeting. This meeting discussed and
resolved to form a new Core Working Group. This new group failed, too. It was
same again: some members transferred to other dzongkhags; others remained busy
with their families and jobs/business.
Pic: With Erika Terpstra, the former Olympic Gold Medalist for Swimming and now President of the Dutch National Olympic Committee.
It was taking long enough.
Four years had already gone, without achieving anything. Tashi Namgay had stood
anxious, sad, and mostly helpless. He couldn’t sleep at night. All nights, he
would be tossing and turning around in bed, thinking about his project and
those people who were suffering and dying from kidney disease. Several times, he
thought of quitting his project because every time, it was for nothing. Alone,
he could do nothing. And no other individual was coming forward to help him in
his endeavors.
But each time he’d come
across people suffering from kidney failure disease, he was again rejuvenated to
keep working for them, never to quit his project. Because he knew that those
kidney failure patients always lived at the jaws of death, depressed, and without
any means of escapism or outside interventions. And the NGO he wanted to
establish would certainly reduce their sufferings, rescue them from untimely
death, and prevent from the renal disease.
Pic: With the Prince of Sweden
In desperation and worried,
Tashi Namgay started hunting for different senior bureaucrats, corporate
employees, businesspeople and other popular local celebrities for support. He
shared the problems of kidney-related diseases and his aspiring project to them.
Many showed interest and assured him to provide necessary help in his project.
But in reality, it’s far from that. No one did bother to support him, not at
all. It’s always the same-nothing happened, nothing achieved.
By then, Tashi had expensed
a huge amount of money and five years of time in his endeavor to establish NGO.
Once he told me, “If I had invested such amount of money and time for a
business, I’d have become a millionaire today.”
There was a bunch of people
(including his own relatives and colleagues) who had demoralized him from
working for kidney failure patients. They blatantly criticized him that he was
becoming “too ambitious”, acting “over-smart”, and trying to “become popular”. Similarly,
many other people questioned and challenged his capacity to establish NGO,
about his qualification and experience. This had brought stunning upset in him;
his hopes flickered.
Others insisted Tashi
Namgay to quit social works and this project which according to them seemed out
of his reach. One person told him, he narrated it to me, “If you cannot stand
on your feet properly, how you can you help others. Better quit what you are
doing and prioritize your own wellbeing and family.” As he shared this to me, I
saw a drop of tears in his eyes.
In fact, those people were
right, matter-of-factly. Tashi Namgay had no house of his own to live in
Thimphu, no car to drive, and all time his bank balance remained negative. The meager
salary he earned finished before month’s end. And he could hardly treat himself
with new clothes, shoes, and good meals. His family members were always upset
with him because he could do or bring nothing at home. Always, he walked lonely,
mostly broke and hopeless.
Ask him where he had spent
his salary. Almost twice a week, Tashi Namgay would visit the Patient’s Guest
House at JDWNR Hospital where about 30 kidney failure patients who were undergoing
dialysis were housed in a catastrophic condition. They were poor, homeless, orphans,
without relatives, and no good food to eat. More sadly, they were depressed,
dispossessed and merely waiting for the death in a lamentable display. Tashi
Namgay would visit there with grocery and other basic necessities for the
patients.
To those patients, he seemed
so rich that they imagined he could give them everything. One of the patients
told me, “Many Lyonpos, Dashos and Aums promised us hope and forgot when they
go back. But he is very promising.”
Here, Tashi Namgay, adorned
with compassion and love, always sat happily surrounded by the poor patients. He
hugged each of them, nursed their wounds and shared their plights. As he gave
them tender loving care, he also cried with them. In his every visit, he counselled
the patients on their diets and mental health and fed hopes and aspirations
upon them.
If those people had a belief
in God, Tashi Namgay was the true manifestation of God for them. I’m not
exaggerating. Those patients felt that only Tashi Namgay could bring difference
in their life and redeem them from their unending sufferings. All his efforts,
in fact, had brought a drastic change in the lives of hundred of kidney failure
patients. The faith, hope, and expectation they had upon him; however, offered a
bigger responsibility and gave him a resolute confidence never to quit what he
was doing oblivious to his own problems.
The year 2010 arrived, five
years passed, and there were no hopes of establishing NGO this far out. The
first time I met Tashi Namgay was in the mid of 2010 when I joined the office
of Department of Youth and Sports. Here, I also met another friend of mine, Amrith
Bahadur Subba. It was as if the fate had brought three of us together for a
cause, for kidney failure patients of Bhutan.
Three of us started getting
along very well. Often, especially on weekends, we would whisk out for outings.
There, Tashi Namgay used to share to us about the problems of kidney-related
diseases and sufferings of those patients. Sometimes, smacking on momo and over
cup of tea, he used to consistently talk about his aspiring project to
establish a kidney foundation.
Also, he’d take us to the
Dialysis Room and Patient’s Guest House at JDWNR Hospital. Other times, he
would invite us to his house for dinner where we used to always talk about establishing
his project. Tashi Namgay has neither much education nor the knowledge of the
Book, but he knew his mind, understood the reality and apprehended the system. And
always, he delights me with his wide-ranging worldview, astute critical mind,
and entrepreneurship talents. All this interested me to work along with him, in
his endeavors.
In November 2010, a new
Core Working Group of the Kidney Foundation amongst three of us was formed to
draft CSO documents. This team, though very small, worked all holidays and
weekends and sometimes after office hours. At times, we stayed late night brainstorming
and drafting the documents. It’s quite surprising that none of us has missed a
single meeting. And one by one, we complete drafting the CSO documents of the Bhutan
Kidney Foundation exactly in six months.
Pic: With Board and executive members of BKF
Meanwhile, a few local film
celebrities and other individuals came forward and helped drafting the
documents. They have also supported kidney failure patients in providing
financial and other contributions. Tashi’s natural talent to do the talking could
convince and impress many businessmen, bureaucrats and powerful senior citizens.
And people started coming forward with cheque, cash, and contributions in all
kinds. Even the His Majesty Secretariat Office supported the Foundation editing
and making necessary changes in the documents and processing the BKF’s CSO
application to the CSO Authority. By the end of 2011, it was applied for legal
registration to CSO Authority, and last August it formally got register.
Tashi Namgay proved all his
critics wrong. Today, he could register his NGO and more importantly, he has
become the Executive Director of Bhutan Kidney Foundation. He showed to others
that a young man, without much qualification and experience, if driven by altruistic
passion, hard work and confidence can become a leader and bring positive change
in our society.
Lastly, Tashi Namgay’s
efforts and difficulties are in service of hundreds of poor patients who are at
the jaws of death and for the country. And we, even if we cannot support him in
his service all time, it’s our natural responsibility to encourage and provide
him moral supports, or at least, say a prayer for him. May God bless him today,
tomorrow and always!
Pic: With Go Youth Go members (He is also the Founder of GyG)
Pic: With Junior Chamber International Bhutan members (He is one of the Executive members of JCI Bhutan)